My name is Katie Schulz. My dream is to help find a cure for cystic fibrosis. My daughter Sophia has this fatal genetic disease, which affects mainly the lungs and digestive system. I’m starting this blog to share my insights and experiences with cystic fibrosis and to increase awareness.
A bit about me first… I grew up in Toronto, did my BSc in Psychology at U of Toronto, and then my MScPT (Physiotherapy) at McMaster University. I’ve worked in the hospital setting with pediatrics, adults, and in the burn unit. After having Sophia I decided to stay home to care for her and be her personal physiotherapist. I’ve worked part-time outside the home, but spend most of my time with my kids.
Never heard of cystic fibrosis? Here’s a quick rundown. Cystic fibrosis is the most common fatal genetic (inherited) disease affecting young Canadians. Thick mucous causes problems with the lungs and digestion, but can affect almost any organ in the body. There is no cure. Currently, only half of those with cystic fibrosis are expected to live into their 40s and beyond. On a typical day, my daughter spends 2 hours completing chest therapy to help keep her lungs clear. She takes 15-20 pills with meals, just to digest her food. She also takes supplemental vitamins and minerals as her body has a tough time storing them. To say the least, life isn’t easy for someone with cystic fibrosis.
More information can be found on Cystic Fibrosis Canada’s website: http://www.cysticfibrosis.ca.