cysticfibrosismom

I'm just a regular mom, figuring out life with my daughter Sophia, who has cystic fibrosis.Take this journey with me.


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TIME

TIME. It’s on a lot of our minds. Maybe we find ourselves running out of time in our day, trying to juggle work, our children’s schoolwork, household responsibilities, exercise. Maybe we find ourselves with too much time on our hands, out of work, living alone, watching the seconds tick by. The days meld together, with nothing to distinguish one from the next. Should I measure the days by how much milk is left in the fridge? By how many sleeps until I chat with my friends online? By how many enzymes are left in the bottle, or how many days of Pulmozyme remain until I must head back to the pharmacy to replenish Sophia’s meds?  No matter how I look at it, I am starting to become robot-like in my day-to-day actions. I am starting to forget how to appreciate time and am instead encumbered by it.

A friend of mine showed me a video by Beau Miles (https://www.youtube.com/watch?v=EvT5XS7j-Dc&t=1s), who decided to mark each hour by running a mile and filled the gaps in between with projects. Over 24 hours, he ran a marathon and marked off dozens of tasks on his to-do list. He forced himself to focus on his work, his body, and his mind. It got me thinking…

Maybe I should measure my hours by the breaths I take, the hugs my kids give me, my successes (no matter how big or small). I should rejoice the passing seconds, not endure them. At least for 24 hours.

Many of us are guilty of taking some things in life for granted. Maybe it’s the love of your family. Maybe it’s fresh air you breathe, or the clean water you drink. Maybe it’s the ease of each breath.

In the days of COVID-19, more people are realizing how precious health is. They are learning the importance of washing their hands, covering their coughs, and keeping their distance.

On May 31, I am challenging myself to run (let’s be realistic… walk) a mile each hour for 24 hours. I will not take the strength of my body, my mind, and my lungs for granted.

I am doing this to support my daughter Sophia, who lives with cystic fibrosis and spends hours every day focused on improving her breathing.

Cystic fibrosis affects many body organs, but most noticeably the lungs, where thick mucous accumulates and breathing becomes difficult.

What can YOU do? You can take this challenge with me. You can come out and cheer me on as I run/walk by (I’ll be doing a 1-mile loop in my neighbourhood). You can donate to Cystic Fibrosis Canada: http://my.e2rm.com/personalPage.aspx?EventID=283991&RegistrationID=4635073. You can start appreciating your health, rather than taking it for granted.