I'm just a regular mom, figuring out life with my daughter Sophia, who has cystic fibrosis.Take this journey with me.


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What drives us? What makes us get up in the morning and accomplish things? Crawl out of bed or jump out of bed?

This is my pep talk. As I start feeling tired and burnt out, I need to remind myself of all the reasons I keep going, and going, and going.  


That’s an easy one. My love for my kids is what pushes me to keep raising funds and awareness for cystic fibrosis. I want Sophia to have the best life possible. I don’t want her to feel the burden of living with an illness. I want her to be able to do anything and everything she puts her mind to. I want Simon to live without fearing what might happen to his big sister. Love is my most positive driving force. It makes me feel like I’m riding on a big white puffy cloud. Every breath pushes me higher and closer to my goals.


Not such an easy one to cope with. It can be crippling. Or it can be empowering. The heavy feeling in my chest. My heart racing. My mind buzzing. These could each have the power to stop me in my tracks. And at times, they have. Or I could harness them. What good is a racing heart, if you’re not pushing yourself? If you’re not moving forward? What good is a busy mind if it’s not coming up with new ways to motivate others, to fundraise, to be a more productive person? 


I hate this one. It sneaks up on me. It makes me sad. If I embrace it and face it head on, it can make me a stronger person… or so people say. Sometimes I confront fear. Tell it to back off. Sometimes I escape. If I run quickly away from fear, then I can sometimes close in on the next feeling… 


Ah, yes. Hope. Hope fills my bucket. The more support we have, the more research pushes forward, the more hope we have. I like it. But I can’t sit around waiting for hope to find me. I look for it in the news releases on breakthroughs in research. I find it in the ever-increasing median age of survival. I breathe it in when I see Sophia racing with her friends.

We all have our reasons for getting out of bed in the morning.


One thought on “Motivation

  1. I could not agree more…watching my own Sophia with CF every day I go through the same emotions. Well put! x

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