cysticfibrosismom

I'm just a regular mom, figuring out life with my daughter Sophia, who has cystic fibrosis.Take this journey with me.

If I could put it in a bottle.

2 Comments

The blood-curdling scream as I hold her tight,

Her legs and arms wrapped in mine,

Hold still little one,

For it’s only bloodwork, and it will be done soon.

If I could put her anxiety in a bottle,

I would throw it deep into the ocean

Never to return.

 

When something strikes that certain note,

Deep down, and tickles her mind,

Belly-shaking giggles erupting,

Lighting up her face and my heart.

If I could put her laughter in a bottle,

I would keep it under my pillow

For a rainy day.

 

The night-time cough, the hacking cough,

Seconds become minutes become hours,

Piercing through the silent night,

The sound competing with my beating heart.

If I could put her cough in a bottle,

I would give it to the researchers

To find a cure.

 

When I walk into a room and see her face,

Whether after minutes or hours or days away,

That smile, radiating from her mouth, her eyes,

Filling my soul with unconditional love.

If I could put her joy in a bottle,

I would share it with all who suffer

And save the world.

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2 thoughts on “If I could put it in a bottle.

  1. Katie,
    Nothing can truly do justice to what you say:

    Moving words, touching testimony are these
    That from the loving heart of a Mother flow,
    Like streams of crystal water from a spring.

    Still, allow us to blend our words with yours, wishing:

    Let there no longer be one trace left of a dark cloud
    That even for a day on life’s blue horizons to interfere
    With sun’s life giving brilliance on the sky.

    When comes to human affairs, Robert Frost in ‘Bond and Free’,
    Has poignantly contrasted Heart’s preponderance over Reason:

    Love has earth to which she clings
    With hills and circling arms about—
    Wall within wall to shut fear out.
    But Thought has need of no such things,
    For Thought has a pair of dauntless wings.

    On snow and sand and turf, I see
    Where Love has left a printed trace
    With straining in the world’s embrace.
    And such is Love and glad to be.
    But Thought has shaken his ankles free.

    Thought cleaves the interstellar gloom
    And sits in Sirius’ disc all night,
    Till day makes him retrace his flight,
    With smell of burning on every plume,
    Back past the sun to an earthly room.

    His gains in heaven are what they are.
    Yet some say Love by being thrall
    And simply staying possesses all
    In several beauty that Thought fares far
    To find fused in another star.

  2. tears welling

    Date: Fri, 11 Oct 2013 01:21:42 +0000 To: schmatt_@hotmail.com

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