cysticfibrosismom

I'm just a regular mom, figuring out life with my daughter Sophia, who has cystic fibrosis.Take this journey with me.


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Oh boy.

This blog has mainly focused on my journey with Sophia, the challenges we have overcome, and the victories we have cherished. I also have a 2-year old son Simon. Although he does not have cystic fibrosis, he presents me with a different set of parenting challenges. He is a little boy with a lot of spunk.

This week I get to enjoy my little guy more than usual. Sophia is away for the week with grandma, so it’s just me and Simon. All day long. I get to drink in the facial expressions he shoots at me, and hum along with his constant stream of consciousness. If I didn’t get the feeling that bad things usually happen to child actors, I would sign him up with an agent. I don’t know if it’s because he has to compete with his sister for attention that he is so loud, expressive, and dramatic, or if it’s purely a consequence of temperament and genes. Either way it’s thoroughly entertaining.

Image  DSC_1856

It’s fascinating to hear what goes through the head of a very verbal 2-year old.  Just this morning: “Mommy, I made a mess with my milk.” [stirs finger in said milk] “Look, I make a picture!” [sticks milky finger in mouth] “It tastes like warm milk! Tasty.” [puts whole hand in milk and starts smearing] “Mommy, I clean it up.” [wipes hand across shirt]. “My shirt is dirty. Let’s put it in the washer.” [heads downstairs]. About ten minutes later, with a clean shirt on: “Mommy, are you paper?” [runs at me with open marker and devious smile on face]. “No? Am I paper?” [points marker at clean shirt, eyebrows raised, slowly bringing it closer]. “No, that’s silly! Can I have some paper?” You’ve gotta be on your toes at all times with this one.

The ability to sense anxiety and prey on it is one of Simon’s strengths. Much to Sophia’s dismay, it makes him the perfect little brother. Whether he’s grabbing a toy from her hand (that he really doesn’t want) and running away at warp speed, standing right in front of her while she tries to watch a show, or letting his hand hover over her favourite food, he’s got his role down pat.

Don’t get me wrong though. Simon has a nice side as well. If a child is crying he will immediately run over and ask if they’re okay. When he feels he’s taken something a little too far with Sophia he will profess his love for her and give her a hug. Driving in the car with him is more entertaining than the radio. “Look at all the trucks! There’s a green one. I want to see a dirty truck. There’s one! Look, a Canada flag. Ooo, a motorcycle. Where did the motorcycle go? Mommy, go fast. A dump truck! A garbage truck!” I get the feeling that 2-year olds have about the same attention span as puppies.

I wonder what happens if I pull this

I wonder what happens if I pull this

“The quickest way for a parent to get a child’s attention is to sit down and look comfortable.” ~ Lane Olinghouse

“A two-year old is kind of like having a blender, but you don’t have a top for it.” ~ Jerry Seinfeld

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Sophia’s Goodnight Story

Okay, so every parent thinks their child is a prodigy. They are the most beautiful, intelligent, articulate, graceful, witty beings in existence. Somehow we manage to block out the whiny voices, grumpy faces, hitting, screaming, stubborn, arms crossed, pouting beings. It’s a good thing for the continuance of our species that we have selective amnesia when it comes to our offspring.

So, in true parent fashion, I am going to share the brilliance of my 4-year old daughter with you. Last night she decided she wanted to make up her own bedtime story. She narrated, and I wrote. Here’s what she came up with:

 

Sophia’s Goodnight Story

 

Good night, the stars are

Shining bright at night.

 

1, 2, 3, 4, 5, 6, 7, 8.

 

Big rose, little rose,

Big roses shine at night.

 

Hoppy Haddy, Hoppy Haddy,

 

How high does he jump?

Plain out of sight, and bed.

 

Every guy inside the warm night,

Sleep tight.

 

In the night, Queens are the ones that settle in,

And sleep the night.

 

Blocks are making Floppy’s bed,

1, 2, 3, 4, 5, 6, 7, 8, 9, 10.

 

One hundred days in one day.

 

Pink balloon, Haddy Hoppy box,

Trophy, twenty-three blocks.

 

The End.