cysticfibrosismom

I'm just a regular mom, figuring out life with my daughter Sophia, who has cystic fibrosis.Take this journey with me.

Follow-up to Plane Trips and Cystic Fibrosis

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Well, we are back home safe and sound from our great holiday adventure. We woke up at the crack of dawn on Christmas day, bleary-eyed, and frizzy-haired. We gathered up the kids, the luggage, the plane tickets, and headed to the airport with dreams of Tim Horton’s coffee on the other side of security. The kids, free of caffeine addiction, faired surprisingly well. There was a 20-foot Christmas tree near our departure gate. While the adults woke up more with each gulp of coffee, the children skipped around the Christmas tree. It was lovely in a 6am sort of way.

After struggling to position the carseats in the plane, and Clorox-ing every reachable surface, we were ready for take-off. Based on a good tip from a fellow parent of a child with cystic fibrosis, we also turned the air vents off above our heads. No need for recycled air and coughs from nearby passengers to be shared with us. Sophia enjoyed a constant stream of snacks and television. Jason struggled to know how to manage her enzymes with her constant grazing… and eventually settled with “one every 15 minutes.” Simon practiced the word “out,” annunciating very loudly and clearly for an hour, before giving up and eating some grapes. All in all, it was a good flight.

We arrived at our destination still early in the morning, thanks to the time change, and were able to complete Sophia’s chest therapy at the usual time. We had a truly enjoyable visit with family, and managed to stay infection-free the entire time… a small miracle. On the way home the adult to child ratio was decreased (2:1 on the way there, only 1:1 on the way home), but we still managed to organize ourselves moments before becoming airborne. We’ve been home for 4 days now, and still no infections have reared their ugly heads. I think our strategies were successful this time. Thank you to everyone who offered suggestions on how to make this trip a healthy one!

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