cysticfibrosismom

I'm just a regular mom, figuring out life with my daughter Sophia, who has cystic fibrosis.Take this journey with me.

A Story About Poop- Part One

2 Comments

Yes, you read that title correctly. And what’s even stranger is that this topic was requested by a friend of mine. Now this story has ups and downs. It has plot twists and intrigue. So hold on tight and get ready for the ride of your life.

Once upon a time there were two adults who rarely concerned themselves with poop. And they certainly didn’t talk about it with each other. What happened behind closed doors stayed behind closed doors. The second their baby was born though, it became a regular part of the conversation. Often these parents found themselves reminiscing about the poops of the day play by play. “Did you see how far up her back that one went?” “I can’t believe she pooped 6 times today.” “That one was a doozy.”  My husband always seemed to get the worst of it. I went to get groceries one day, and I left Sophia in the Jolly Jumper with Jason sitting next to her. As soon as the car pulled out of the driveway Jason heard a sound. It was a big sound. He hesitantly glanced over at Sophia only to find a huge grin on her face… and a big smell coming from behind. And of course, the poop had escaped her diaper and was traveling towards sweet freedom… the carpet. Jason jumped into action, tried to pull Sophia from the Jolly Jumper, only to find his arms caught and twisted in the ropes. Beads of sweat trickling down his face, blurring his vision, panic ensued. Jason was juggling Sophia, trying not to drop her, getting his own shirt covered in poop. By the time he got her to the bathroom all he could do was put her into the bathtub and strip them both down.  But, he had a decision to make. Do I leave my daughter, now crying because of all the drama, in the empty tub to contend with the carpet? Or do I take care of her first? If you know Jason, you would know that this was a big struggle for him. A mind-wrenching decision, some might say. Luckily our dog Oscar came to the rescue. By the time I got home everyone was freshly bathed (Oscar included), dressed in new clothes, and the carpet was clean and sopping wet. I knew I was in for a good story. But, I digress for a moment.

As with most things, I’m finding, cystic fibrosis threw a wrench into our wild hopes of having a regular amount of poop talk in our house. Instead we found ourselves (and still do) very focused on it. It’s a sign of how well Sophia is doing, how likely she is to be gaining weight (through having just the right amount of enzymes), and how comfortable she must be feeling. When she was born, Sophia had a complete obstruction of her bowel. She had emergency bowel surgery when she was 4 days old. They had to give her an ostomy. Even with the ostomy, she was supposed to be able to poop normally (pretty amazing what surgeons can rig up these days). Jason and I called the nurse during the night for poop updates, opened each diaper with bated breath, listened to the doctors make bets on when the first poop would come, until one day, a crazy thing happened…

… TO BE CONTINUED…

Advertisements

2 thoughts on “A Story About Poop- Part One

  1. I have a questions about poop…..my grandson literally cries and screams when he sits on the potty. He says his tummy hurts. I thought he was constipated, but the stool is loose. He takes enzymes before every meal, etc. I told his mom that we should take him to dr. Is this normal or a part of CF.

    • I’m not a doctor, so I won’t give medical advice. I will say that whenever something seems off with my daughter, especially if it’s lung or digestion-related, I check in with her CF doctor. It might not be constipation, but there could be something happening down there. All the best with your grandson!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s