cysticfibrosismom

I'm just a regular mom, figuring out life with my daughter Sophia, who has cystic fibrosis.Take this journey with me.

Living a Legacy

1 Comment

Like Simon’s super-indelible-marker-scribbling on the wall, we leave permanent marks on all those that we meet. When we choose to treat someone a certain way, that choice is important.

When you have a child who lives with a fatal illness, you don’t think about what to leave them once you’re gone. Instead you focus on how you can leave an impact while you’re both living. Cystic fibrosis leaves a big question mark on Sophia’s life. With a focus on increasing our number of tomorrows spent together, I began to ponder the idea of legacy.

At the Mom of the Year weekend in Toronto, all of us moms sat down at breakfast and wrote down thoughts about where we came from- how each block built us up into the tower we are. Sometimes that tower is so strong, nothing can touch it. Other times a light breeze causes pieces to break off and come tumbling to the ground. What did we learn from our own parents, and what are we teaching our children? How do our actions impact the strength of our children’s towers?

The other day I came across the concept of living a legacy. These are the actions and values that I live “into” each day. I value hard work. I value kindness. I always want to be someone my children can come to- when they’re happy, when they’re sad, when they’re proud, when they’re scared. I want my children to be confident, yet humble. I want them not only to feel loved, but also know how to love. These values and actions are important to me. I hope they build a strong foundation for my children.

Instead of just leaving my legacy, I am living my legacy.

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One thought on “Living a Legacy

  1. Katie as a mother your relationship to Sophia is unique. I would just like to add that all of us who know your family and Sophia are in complete solidarity living together with you your unique legacy.

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