Positive reinforcement comes from family and friends. “You are the
Reason Sophia’s doing so well.” I feel proud of my commitment to her, but
Expectations for her good health are high. What if Sophia should get really
Sick? Is it my fault? Did I not work hard enough? Of course not. I am
Strong, but not infallible. At times I will take her illness personally. I look for
Understanding from my support system. I can’t take all the credit for her health.
Reasons beyond a mother’s control cause up and downs in cystic fibrosis. I feel both
Energized and wary of the ups. We can’t always judge the parent for the downs.
Being the parent of a child with cystic fibrosis comes with great Pressure.
Thank you to my loving family and friends for supporting me through all the peaks and valleys.