cysticfibrosismom

I'm just a regular mom, figuring out life with my daughter Sophia, who has cystic fibrosis.Take this journey with me.

Pressure

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Positive reinforcement comes from family and friends. “You are the

Reason Sophia’s doing so well.” I feel proud of my commitment to her, but

Expectations for her good health are high. What if Sophia should get really

Sick? Is it my fault? Did I not work hard enough? Of course not. I am

Strong, but not infallible. At times I will take her illness personally. I look for

Understanding from my support system. I can’t take all the credit for her health.

Reasons beyond a mother’s control cause up and downs in cystic fibrosis. I feel both

Energized and wary of the ups. We can’t always judge the parent for the downs.

Being the parent of a child with cystic fibrosis comes with great Pressure.

Thank you to my loving family and friends for supporting me through all the peaks and valleys.

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